Have you ever sat on the sofa eating dinner and watching TV?
Yup, that was me and the next minute I was in cardiac arrest. I woke up on the floor, arms outstretched, it felt as if Ryan was waking me from a deep sleep. For a moment I thought I was in bed being woken to see to the kids!! Then I realised my vision was blurred. I was on the living room floor. Ryan was on the phone shouting my name and asking if I was OK. I felt drunk responding in a fog. Then the paramedics arrived and suddenly I realised there was a problem. I felt heavy. They sat me up and did some checks and an ECG. They looked at it and then rechecked the lines, and looked again. They hadn’t seen this before… once Ryan had changed me (I hadn’t even realised I’d wet myself from having the seizure) I was loaded into the ambulance. I felt so sick, but they were so lovely and reassuring. I’m sure I was waffling rubbish! I felt very sleepy… once in the ambulance, the paramedic rang Bristol and sent my ECG over. He was very honest, saying “I’ve not seen this before, so I want to check if we need to go straight to Bristol or Gloucester”. Luckily they said that as I had no chest pain Gloucester was OK…
Being admitted to the cardiac ward
There was no real explanation as to what had happened and what was wrong with me, but suddenly I realised that they weren’t going to be sending me straight home. In fact, it was quite the opposite. Their medical interests had pricked up and they even asked if they could keep a copy of my ECG for their students to study. I felt like saying, “maybe someone can start explaining it to me first!?” But of course I didn’t. Now I think how amazing it is that my ECG may teach another doctor how to spot the signs of brugada syndrome.
I was taken to the ward, a ‘unisex’ ward that was all men! Oh the joys… it’s now late at night so they were all snoring and farting!! Enough to send me insane… Ryan’s not even allowed to breath loudly near me!
So Ryan was sent home. I was left all alone in my cubicle behind the curtain… what the hell has happened? Things like this don’t happen to me… my babies were going to wake up and I wasn’t going to be there. The questions will start and we don’t even have the answers. I was in shock. Too frightened to sleep. I just lay there for hours and hours….
I can’t quite remember when, but the doctor came round and broke the news that they believed I had brugada syndrome. I lay there numb, I had what…?? I sent messages to family and started to google NHS website… brugada syndrome aka sudden death in adults…